Support to involve, engage and recruit people with arthritis in research
Arthritis research PPIE and recruitment
We want people from diverse backgrounds with lived experience of arthritis to be participants, active partners and leaders in research. We're here to support and guide researchers from academia and industry to do this effectively.
Patient and public involvement (PPI) refers to a person with lived experience of arthritis, acting as active partners in research. For example, people with arthritis are involved in setting research priorities and steering the direction of research.
Find out more about involvementPatient participation refers to people being recruited to take part in a research study as participants, for example, people with arthritis as subjects in a clinical study.
Find people to participatePatient engagement is where information and knowledge about research is shared, for example, people with arthritis attending an open day or research seminar.
Effective disseminationProfessor Lucy Donaldson, Director of Research at Arthritis UK
PPI support
Complete our research involvement request form if you would like to access our lived experience voices/network. To discuss your plans with us first, get in touch at researchinvolvement@arthritis-uk.org.
Research Involvement Request Form - Arthritis UKPPI support for academic researchers
We can share your opportunities to shape research with our research partner network (people with lived experience interested in research involvement).
If you are an Arthritis UK-funded researcher and you would like support and advice on delivering your involvement activities, we’d be happy to help. For those not funded by us, if you’d like to work in partnership on a project, we’d be happy to explore how we could support, advise and deliver PPI activities with you.
PPI support for industry
We can support you in several ways to deliver your research involvement activities, for example:
- Promoting opportunities to shape research through our research partner network.
- Support and advice on your approach and activity.
- Working in partnership, including the delivery of PPI activities.
You may also be interested in seeing our wider corporate partnerships offer and our 2023 report on partnerships between industry and patient organisations.
Support to recruit of research participants
If you are an Arthritis UK-funded researcher and you would like support to recruit, please get in touch with our Research Liaison team.
We do not directly facilitate recruitment to projects beyond our portfolio. We encourage researchers beyond our portfolio to ensure their projects are listed on the Be Part of Research platform.
Be part of researchWe work very closely with the NIHR to signpost people with arthritis in our networks to sign up to Be Part of Research. People with arthritis can search all of the arthritis projects directly from this page on our website - Find a research study to take part in. This is the best way to access our research-ready networks of people with arthritis.
Get in touchSupport with your engagement or dissemination
Please come and talk to us about your research results and your plans for sharing your research findings with people with lived experience of arthritis, health professionals and researchers. Our Research Liaison team will be happy to discuss your results and how we can support your dissemination.
Get in touchCost-recovery
When working in partnership with industry or providing more significant input on academic projects, we will seek to ensure that our costs are recovered in line with the Fair Market Value for Charities in Partnership Work report.
PPIE case studies
At the heart of Leeds City Centre, Dermatology and Rheumatology researchers from the Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, hosted a research drop-in centre, providing patients with a private and confidential space to participate.
COPPACA case studyHow Alleviate created an online, safe platform for researchers to access pain-related data, working with Health Data Research UK (HDR UK), to better tackle the challenges in understanding the complexity and unpredictability of pain.
Alleviate Pain Data HubThe Advance Pain Discovery Platform project, SenseCheQ, conducted community-based sensory testing for early identification of Chemotherapy Induced Peripheral Neuropathy, and weaved PPIE through all parts of the research cycle.
SenseCheQ sensory testingSee also
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Open and future funding calls
We fund all stages of arthritis research: explore our current open funding opportunities and future funding calls key information.
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Sign up for our researchers newsletter
Our quarterly research newsletter will keep you up to date on news from the Arthritis UK Research team.
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Overview of PPIE standards & guidelines
This page combines the UK Standards for Involvement in Research, EULAR recommendations and Arthritis UK guidelines to give one helpful point of reference.
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Communicating in lay language
Learn how to engage diverse audiences with clear accessible language and compelling narratives.