Support for researchers to involve, engage, and recruit people with arthritis in research
We want people from diverse backgrounds with lived experience of arthritis to be participants, active partners and leaders in research. In each area of this hub, you can expect to find advice, tips, collated resources and case studies. Find out more about the support we can offer you to work with people who have lived experience of arthritis in your research.
Patient involvement refers to a person with lived experience of arthritis, acting as active partners in research. For example, people with arthritis are involved in setting research priorities and steering the direction of research.
FInd out more about involvementPatient participation refers to people being recruited to take part in a research study as participants, for example, people with arthritis as subjects in a clinical study.
Find out more about participationPatient engagement is where information and knowledge about research is shared, for example, people with arthritis attending an open day or research seminar.
Find out more about engagementWhilst engagement and participation are valuable ways of interacting with patients and the public, we consider involvement to be the gold standard you should strive to implement throughout your research project, from inception to conclusion. Ideally, all three elements should be incorporated.
Professor Lucy Donaldson, Director of Research at Arthritis UK, introduces our PPIE hub
Fundamentals of PPIE
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Checklist for Planning you involvement
Developing an involvement plan before you begin will maximise the benefit of your activities and ensure that they are suitable and accessible for people with arthritis.
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Involvement In Research Planning Template For Researchers
This document aims to support you to plan and consider how to involve people with arthritis in your research project or programme.
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Costing for PPIE
This page gives an understanding of the elements that researchers need to consider when adding up costs for PPIE work. It includes things to think about such as venue hire, training, and payment for involved people.
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Diversity and inclusion of PPIE groups
Resources to help guide you to make your PPIE more diverse and inclusive. Things to remember when involving people from all backgrounds with arthritis. Age, accessibility, ethnicity, frameworks.
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Communicating in lay language
Learn how to engage diverse audiences with clear accessible language and compelling narratives.
A reflective note about the terminology used throughout: There are many different preferred terms that people use when co-creating together with people living with arthritis. We have used the terms 'Research Partner' and 'Patient Partner' interchangeably within the hub. Equally, we have interchanged 'subject' and participant'. It can be valuable in PPIE partnerships to discuss and agree what terms your research partners would prefer to use, as different groups prefer different terms.