Support for researchers to involve, engage, and recruit people with arthritis in research
We want people from diverse backgrounds with lived experience of arthritis to be participants, active partners and leaders in research. It is always helpful to remember the fundamental reason why we are so invested in carrying out world class research into arthritis. You can read stories from people affected by arthritis. Our hub shares knowledge of how you can work with people who have lived experience of arthritis in your research.
Whilst engagement and participation are valuable ways of interacting with patients and the public, we consider involvement to be the gold standard that you should strive to implement throughout the course of your research project, from inception to conclusion. Ideally, all three elements should be incorporated.
You can expect to find information on the support we provide, collated resources and case studies.
Patient and Public Involvement and Engagement
Participation
Patient participation is, for example, people with arthritis as subjects in a clinical study.
Involvement
Patient involvement is, for example, people with arthritis involved in setting research priorities and steering the direction of research.
Engagement
Patient engagement is, for example, people with arthritis attending an open day or research seminar.
View Patient and Public Involvement and Engagement content
Participation: Find people to participate in your research
Professor Lucy Donaldson, Director of Research at Arthritis UK, introduces our PPIE hub
Fundamentals of PPIE documents
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PPIE checklist
Developing an involvement plan before you begin will maximise the benefit of your activities and ensure that they are suitable and accessible for people with arthritis.
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Involvement In Research Planning Template For Researchers
This document aims to support you to plan and consider how to involve people with arthritis in your research project or programme.
A reflective note about the terminology used throughout: There are many different preferred terms that people use when co-creating together with people living with arthritis. We have used the terms 'Research Partner' and 'Patient Partner' interchangeably within the hub. Equally, we have interchanged 'subject' and participant'. It can be valuable in PPIE partnerships to discuss and agree what terms your research partners would prefer to use, as different groups prefer different terms.