Support for researchers to involve, engage, and recruit people with arthritis in research

We want people from diverse backgrounds with lived experience of arthritis to be participants, active partners and leaders in research. It is always helpful to remember the fundamental reason why we are so invested in carrying out world class research into arthritis. You can read stories from people affected by arthritis. Our hub shares knowledge of how you can work with people who have lived experience of arthritis in your research.  

Whilst engagement and participation are valuable ways of interacting with patients and the public, we consider involvement to be the gold standard that you should strive to implement throughout the course of your research project, from inception to conclusion. Ideally, all three elements should be incorporated.  

You can expect to find information on the support we provide, collated resources and case studies.

Patient involvement, engagement and participation

View involvement, engagement and participation content

Involvement: patient involvement in arthritis research

Engagement: effective dissemination of your results

Participation: Find people to participate in your research

A reflective note about the terminology used throughout: There are many different preferred terms that people use when co-creating together with people living with arthritis. We have used the terms 'Research Partner' and 'Patient Partner' interchangeably within the hub. Equally, we have interchanged 'subject' and participant'. It can be valuable in PPIE partnerships to discuss and agree what terms your research partners would prefer to use, as different groups prefer different terms.