‘Inside Arthritis’ – Arthritis UK hosts art exhibition in Parliament

At Arthritis UK, we believe that the estimated 10,000 children and young people living with a form of arthritis deserve to be recognised, treated and supported.  

That is why in the lead up to this year’s World Young Rheumatic Disease Day (WORD Day) we were incredibly proud to launch a young people's art exhibition, ‘Inside Arthritis’, within the walls of Parliament to shine a light on young people’s experiences growing up with rheumatic conditions.

‘Inside Arthritis’, hosted from March 9th to 12th, invited Parliamentarians to challenge the common misconception that arthritis is ‘just an old person’s disease’. We are grateful to MP Manuela Perteghella for sponsoring the exhibition and advocating for our young ambassadors. 

MP Manuela Perteghella at Arthritis UK event

The exhibition displayed a collection of arts using different mediums and from Arthritis UK’s ‘Joint Creativity’ art programme. The art self-management programme is offered through our Young People and Families Service (YPFS) who provide support to young people aged 0-25 years and their families across the UK. 

Juvenile Idiopathic Arthritis (JIA) is a form of inflammatory arthritis diagnosed in people under the age of 16. Receiving a diagnosis at such a young age can be an overwhelming and isolating experience.  

A child with JIA

That is why ‘Joint Creativity’ educates young people about the science behind their condition through fun and accessible mediums. These interactive sessions are an opportunity to connect with a community that understands the difficulties of growing up with a chronic illness.  

This is true for Hayley, 13, from Tunbridge Wells, who said: “Through ‘Joint Creativity’ I’ve met other young people with JIA or similar conditions, and spending time and creating art with them has helped me to realise I’m not alone in this. Whenever I’m with them there’s such an amazing sense of community and a fun, supportive and inclusive atmosphere.” 

 

Having a creative outlet can make living with a long-term chronic health condition less intimidating and encourage young people to feel in control of their condition.   

Olivia, 15, from Llanelli, said: “When I was first diagnosed, I was given a creativity journal, being able to colour and express myself not only helped with the joint pain in my hands, but it also helped me process my emotions.” 

To celebrate the opening of the exhibition, we were delighted to invite a handful of wonderful young people and their families into Parliament for a reception. The young artists shared their stories with MPs, giving them a chance to hear about the stigma and challenges of growing up with arthritis and related rheumatic conditions.

Penny, 15, from Kent, gave a heartfelt speech at the reception and shared her journey of coming to terms with her diagnosis of JIA.  

 

Penny and her local MP Tony Vaughn

Penny said: “There’s still a misconception around JIA because people still think that arthritis is something that only affects older people. I think the fact younger people get it needs to be more well-known because that awareness would bring more understanding.” 

The reception was a great success, and many young people enjoyed the chance to catch up with friends made through ‘Joint Creativity’. Deborah Alsina MBE, Arthritis UK’s Chief Executive, was grateful for the opportunity to meet so many of our talented young individuals, and to advocate on their behalf.   

Deborah said: "'Inside Arthritis’ is a great opportunity for Parliamentarians to hear first-hand from our young community about the stigma and challenges of living with arthritis. 

“Many of us know someone living with arthritis, the resilience it requires and the knock-on impact it can have on quality of life and mental health. This is particularly acute for those affected earlier in life; one study has shown nearly 60% of children and young people with Juvenile Idiopathic Arthritis (JIA) had or required mental health support. 

“Current polices and services do not adequately reflect the impact on both the individual, family and society. We hope that by hearing from young people, parliamentarians will be inspired to help us advocate for greater change and in doing so tackle the misconception that arthritis is an older persons’ disease.”