Madeleine's story: “I should be chasing my grandkids, not my treatment"

75-year-old Madeleine Swanson from Shevington, Wigan was just 5 years old when she was diagnosed with arthritis. The news came following a 12-month hospital stay. At first, doctors suspected that Madeleine had Still's disease (a rare type of inflammatory arthritis). But it was later revealed that she actually had rheumatoid arthritis (another type of inflammatory arthritis).  

Due to her age when diagnosed, Madeleine grew up in the healthcare system. She describes being “weaned on medical terminology” and notes that from an early age, she would gladly question her doctors as “information is knowledge and power”. 

The "bionic woman"

Madeleine tried a number of treatments over the years but found their side effects challenging. When she was 39, Madeleine had her first hip replacement. Later, her other hip was replaced along with both knees. She jokes that her medical team describes her as “the bionic woman”. 

But despite Madeleine’s positive outlook, there are moments when her condition gives her pause: “Many other joints have been affected over the years and I’m definitely finding new parts of my body getting stiff as I get older. I have also been hospitalised with the impact of the disease upon my immune system, affecting both liver and kidney function and also my digestive system.” 

Throughout the ups and downs, the support of her husband has been priceless: “I married at 20 and had 3 children. And I am still married after 56 years – my husband George has been my absolute rock to this day.” 

George’s support, along with careful self-management, allowed Madeleine to pursue further qualifications in her 40s. This led to a 26-year career in child protection and safeguarding.  

“A great part of my work involved enhancing the life chances of children with disabilities,” she says, reminiscing. “I eventually retired at 66 years old. I’m proof you can live a full life with arthritis!” 

Keeping active by volunteering

Following her retirement, Madeleine stays active by spending time with her grandchildren and volunteering for various causes. But she’s also keen to use her experience of ‘a life lived well with arthritis’ to encourage others.  

“I have always felt it is important to try and stay ‘one step ahead’ of rheumatoid arthritis,” she says. “Try and concentrate on the positives as opposed to the negative aspects. It’s easier some days than others. And the right medications can help to improve your quality of life.